A case study of stakeholder perceptions of patient held records: the Patients Know Best (PKB) solution

Bidmead, Elaine ORCID logo ORCID: https://orcid.org/0000-0003-0166-4506 and Marshall, Alison ORCID logo ORCID: https://orcid.org/0000-0001-6816-2362 (2016) A case study of stakeholder perceptions of patient held records: the Patients Know Best (PKB) solution. Digital Health, 2 . pp. 1-15.

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Official URL: https://doi.org/10.1177/2055207616668431


Introduction: Patients Know Best (PKB) provide a patient portal with integrated, patient controlled digital care record. Patient controlled personal health records facilitate coordinated management of chronic disease through improved communications among, and about patients across professional and organizational boundaries. An NHS foundation trust hospital has used PKB to support self-management in patients with Inflammatory Bowel disease; this paper presents a case study of usage.

Methods: The Stakeholder Empowered Adoption Model provided a framework for consulting variously placed stakeholders. Qualitative interviews with clinical stakeholders and a patient survey.

Results: Clinicians reported PKB to have enabled a new way of managing stable patients, this facilitated clinical and cost effective use of specialist nurses; improved two-way communications, and more optimal use of outpatient appointments and consultant time. The portal also facilitated a single, rationalised pathway for stable patients, enabling access to information and pro-active support. For patients, the system was a source of support when unwell and facilitated improved communication with specialists. Three main barriers to adoption were identified, these related to concerns over security; risk averse attitudes of users; and problems with data integration.

Conclusions: Patient controlled personal health records offer significant potential in supporting self-management. Digital connection to healthcare can help patients to understand their condition better and access appropriate, timely clinical advice.

Item Type: Article
Journal / Publication Title: Digital Health
Publisher: SAGE Publications
ISSN: 2055-2076
Departments: Research Centres > Cumbrian Centre for Health Technologies (CACHET)
Additional Information: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License.
Depositing User: Elaine Bidmead
Date Deposited: 19 Aug 2016 17:10
Last Modified: 12 Jan 2024 16:03
URI: https://insight.cumbria.ac.uk/id/eprint/2417


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