Skyrme, Sarah Louise and Woods, Simon (2018) Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability. Childhood, 25 (3). pp. 355-368.
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Abstract
Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.
Item Type: | Article |
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Journal / Publication Title: | Childhood |
Publisher: | SAGE Publications / Norwegian Centre for Child Research |
ISSN: | 1461-7013 |
Departments: | Pre June 2020 Academic Departments and Services > Research Groups > Health and Social Care Evaluations (HASCE) |
Depositing User: | Insight Administrator |
SWORD Depositor: | Insight Administrator |
Date Deposited: | 10 May 2018 11:00 |
Last Modified: | 06 Jul 2021 09:47 |
URI: | https://insight.cumbria.ac.uk/id/eprint/3791 |
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