Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability

Skyrme, Sarah Louise and Woods, Simon (2018) Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability. Childhood, 25 (3). pp. 355-368.

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Official URL: https://doi.org/10.1177/0907568218769365

Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

Item Type: Article
Journal or Publication Title: Childhood
Publisher: SAGE Publications / Norwegian Centre for Child Research
ISSN: 1461-7013
Depositing User: Insight Administrator
SWORD Depositor: Insight Administrator
Date Deposited: 10 May 2018 11:00
Last Modified: 27 Jul 2018 09:54
URI: http://insight.cumbria.ac.uk/id/eprint/3791

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