Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability

Skyrme, Sarah Louise ORCID: https://orcid.org/0000-0002-6173-0117 and Woods, Simon ORCID: https://orcid.org/0000-0002-8998-5234 (2018) Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability. Childhood, 25 (3). pp. 355-368.

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Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

Item Type:	Article
Journal / Publication Title:	Childhood
Publisher:	SAGE Publications / Norwegian Centre for Child Research
ISSN:	1461-7013
Departments:	Health and Society Knowledge Exchange (HASKE)
Depositing User:	Insight Administrator
SWORD Depositor:	Insight Administrator
Date Deposited:	10 May 2018 11:00
Last Modified:	27 May 2025 08:00
URI:	https://insight.cumbria.ac.uk/id/eprint/3791

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