Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability

Skyrme, Sarah Louise and Woods, Simon (2018) Researching disabled children and young people’s views on decision-making: working reflexively to rethink vulnerability. Childhood, 25 (3). pp. 355-368.

Preview

PDF - Accepted Version Available under License CC BY-NC Download (166kB) | Preview

Abstract

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

Item Type:	Article
Journal / Publication Title:	Childhood
Publisher:	SAGE Publications / Norwegian Centre for Child Research
ISSN:	1461-7013
Departments:	Pre June 2020 Academic Departments and Services > Research Groups > Health and Social Care Evaluations (HASCE)
Depositing User:	Insight Administrator
SWORD Depositor:	Insight Administrator
Date Deposited:	10 May 2018 11:00
Last Modified:	08 Jun 2021 10:10
URI:	https://insight.cumbria.ac.uk/id/eprint/3791

Downloads

Actions (repository staff only)

Edit Item